Asperger’s, Tourette Syndrome, ADHD, OCD and Diabetes are no match for this determined mother!

Please give a warm welcome to Em, an amazing mom in Omaha, NE who will stop at nothing to give her boys the healthiest life she can. I had the pleasure of meeting Em recently, and I’m thrilled that she was willing to share her story with all of you here! I’m sure many of you will relate to her journey…from realizing that her boys’ health was suffering…to struggling for answers…and then putting in the hard work (and finances) it takes to implement the natural solutions she believes in so strongly…

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emberEm writes…

“My life changed after the birth of my oldest son in November of 04′. Born with many issues, one of our struggles became something called MSPI (milk soy protein intolerance). Which, after all was said and done from surgeries to NG feeds (Nasal Gastric feeding tube) left a lot of stress and confusion in our home, where new parents had to maneuver through a new food world. All that being said, when he hit 2 years old, we were told he’d out grow his MSPI and to feed him regularly – Even though he failed a conventional milk challenge with pasteurized store bought milk, we were told to feed him normally and see. By the time he was 4 years old, he had been diagnosed as “Failure to Thrive” for his entire life, had a diagnosis of Functional Abdominal Pain and was just a few days away from being in the hospital. He had no energy, was lethargic really, dark circles under his eyes and only wanted to eat macaroni and cheese and ice cream!

It was during this time that my youngest was born and also diagnosed with MSPI! I breastfed the entire time with him. Though he was so sensitive I literally was allowed to eat less than 10 types of food the entire year. None of these foods came from a box or can – this should’ve been my first clue!

dathenBeside myself with worry over my oldest son, I was talking with a friend who jogged my memory of an article I’d read when he was first diagnosed. The article explained that we begin to crave the things we’re allergic to. So, I took to the internet to find what I could and recipes that I could use if I removed the milk from his diet again. This is around the time I stumbled upon the holistic online community at Completely Nourished. I found a few recipes and promptly removed the milk proteins from his diet. Within two days, he was asking for second helpings of food. I added liquid vitamins that were easily digestible for his tummy (all gluten-, casein-, preservative-free, etc.). Within one week, the dark circles under his eyes were gone, he’d put on 2 pounds and most of his personality changed!

Diagnosed with Asperger’s, Tourette Syndrome, ADHD, OCD, etc. I pretty much couldn’t think about his future – I knew what all of these diagnoses together meant. Well, just removing the gross processed milk proteins changed a majority of his issues! His tics were so bad that it would take him 5 minutes sometimes to finish a sentence because he’d tic, stop talking and have to start the sentence over. He was beating himself and had just expressed the desire to have coprolalia (This is what people think of when they think of TS). It was really bad. We removed just the milk and in 3 years, I have not seen his tics come anywhere near that degree anymore. Truth be told, now, when his tics are on a downswing, you wouldn’t even notice he has TS! To top that off, he went from 8 medications down to just 5!!

JaxSo, I went back and read Christy’s story again. I followed a few of her recipes and started to slowly cut out all those additives in his food and his brother’s food. We’re still not 100% additive-free, but we’re probably 99% additive-free now. We also made sure that their food was organic whenever possible as well.

Flash forward 3 years and my son was again being tested for Celiac. So, standing there holding him down for yet another blood draw, I realized that rather than keep doing this, it made more sense to just go gluten-free for him. So, we went gluten-free, too. Within 4 days he had what one neurologist termed “withdrawal” symptoms! It was awful really but, by the next day, just like when he was removed from milk, he was almost the little boy I knew at 2 years old!

Which prompted me back to Christy’s story here, where I poured over anyting that I could get my hands on. Then I went went back and got my geek on. I researched for hours sometimes on the internet about foods, GMOs, preservatives, etc.,  After a little over 2 weeks now casein/gluten free, my oldest is being titrated down on the dosage of 2 of his medications with the hopes that he can get completely off of them! My youngest, who was diagnosed with ASD (Autism Spectrum Disorder) in November of 2012, was originally put on ADHD meds during the day and awful Clonidine at night to help him sleep. Today, after just this short time off of gluten too, he’s now medication free! Unlike my oldest, who you wouldn’t even know had Asperger’s, you will notice my little guys eye contact problem and sometimes his communication issues, but, overall, his whole personality is different. He’s still a little wilder than the neighborhood kiddos, but nothing like he used to be.

em and kidsOn a side note, before I took them gluten-free and as preservative-free and additive-free as I could, I weighed almost 300lbs on the dot. I got whooping cough last year and couldn’t shake it. Went in a second time to the ER and had pneumonia. They sent me home with some antibiotics and strict instructions. Two days later, I got a call from my GP’s nurse. She told me that I was hands down diabetic, but that they needed to perform another test to be thorough. She read off my entire CBC to me and explained what all these numbers meant. While she did say that my illness would give some of these higher readings, it wouldn’t account for how high all of them were or why they were all out of control.

I found out that I had metabolic disorder, my adrenals were running on empty, etc. I sat there and realized that with two parents who had congestive heart failure, one of which had died at 61 years old from it…and my mother at 64 has already had numerous heart attacks, a stroke and 2 stents put in her heart…I had a choice to make!

As I sat there listening to my numbers being read off and listening to my children digging through their Legos in the other room. I realized that I could keep going the way I’d been going or I could die younger than my parents. So, I headed back to the Completely Nourished online community to find recipes and as much information as I could to get myself healthy enough to take care of my boys. To date, I’ve lost a tad over 40 pounds in 2 months! I have way more energy than I have had in years, and I’m emotionally happier and more together than I have been. My whole life has changed!

Had I not found Christy’s site or story here, I have no idea where we would be now. THANK YOU Christy! We wouldn’t be here if it wasn’t for you! And, for anyone out there reading this…KNOW that diet DOES matter!”

Additive-free diet ends lifelong battle with insomnia, fatigue & migraines (Cris Potter’s Story)

Many of you have read my personal journey of how I overcame years of Fibromyalgia symptoms by eliminating food additives from my diet; and I hope you will also take the time to read the guest post below from one of our readers, Cris Potter. We are incredibly grateful that she has taken the time to put into words her very own journey with food additives in an effort help others. It’s amazing what she went through over the years, and we are so pleased that she found a solution for herself! Please share with anyone who may benefit!

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Hi, I’m Cris Potter, retired social worker, and wellness enthusiast extraordinaire. I live in Oceanside, California, a community in San Diego County, with my husband, Dave, and our two kitties, Lily and Freddie.

I love learning, gardening, cooking, crafts, yoga, biking, and lots more.

My health woes began in 1958, the year I was born.

Don’t worry, I’ll summarize

Lifetime of insomnia, fatigue and migraines

Throughout the years, I’ve faced a lot of health challenges, but the most debilitating has been chronic insomnia.  It began when I was an infant. I am certain of this because my mother, a typical well-intentioned mom, brought me to a doctor because she had never witnessed me sleeping. I was under a year old, and she had literally not seen me sleep. At night, when she checked on me, I was in bed, singing. I sang a lot, according to mom. I suppose it was better than crying.

Throughout my childhood, I can recall that night after night, I lay in bed and listened to an old clock chime on the hour and half hour. It was a pretty chime, but I grew to dread it. I still remember thinking, “Oh no, three gongs, then one at the half hour, and oh no! . . . there goes four . . . ,” and on it went. By the time I was in grade school, it was clear to me that the remaining five members of my family were enjoying a night of sound sleep, something I knew little about.

When I mentioned my insomnia to my mother, she repeated the same thing the doctor had told her years before, “Some people need more sleep than others. You’re fine.” Not surprisingly, I was frequently exhausted as a child, and although I wasn’t diagnosed as such, I struggled with a learning disorder. My mother couldn’t understand why my three siblings easily made good grades, and I often didn’t pass. She was afraid of holding me back a year in school because I would be in the same grade as my younger brother. She feared I would be bullied and called ‘flunky’ for the rest of my days. So summer school was a must for me. It was awful, and it didn’t help me read any better!

When I was in the third grade, my father, who was in the military, was transferred to Japan. My siblings and I received numerous vaccines. Every week for several months, we went to a military hospital for a shot. At about the same time, I began to experience a lot of dental issues. My mouth was filled with silver fillings.  Within a few months of those events, I started to experience what I called, “The ants.” I felt as if there were swarms of ants crawling just under my skin. It was terrible, but not as bad as the chronic headaches that I had also developed. I was eight years old.

During those years, I became an outstanding day dreamer; and I continued to live in my inner world throughout the long nights. If you’re beginning to feel sorry for me, please don’t. In spite of my health challenges, I had a lot of fun. I was close to my siblings, and I had friends and a great ‘banana bike.’ I loved that bike! I really only had one problem – my health, or lack of it. Okay, maybe two problems – my poor health and my learning woes.

At school, I struggled along as best I could. Then, in the summer between sixth and seventh grade, a miracle occurred. I discovered that if I snipped a slit into a piece of white paper and isolated one line of text at a time, I could read pretty well. From that point on, everything improved for me academically – but not physically. I complained to my mother that I felt terrible most of the time. I can recall thinking, on more than one occasion, that I must be dying. My mother consoled me, took my temperature and told me that I was fine. But I knew it wasn’t true.

When the headaches got really bad, mom took me to several different doctors. It was clear to me that the doctors had no idea what I was talking about. Some of them actually scolded me for wasting their time. Since then, I haven’t been a big fan of our medical system. I have seen herbalists and naturopaths in the past; but the more I read about wellness, the more I decided to go it alone. Ironically, as a State of Alaska retiree, I have the best medical insurance money can buy. Yes, I would seek medical care in the case of a broken bone or trauma; but, other than that, I am not interested.

From my early teens and throughout the remainder of my life, I have been on a mission: To discover what was ailing me, and to resolve it. At some instinctual level, I knew it was the food. Knew it. The information seemed to be encoded in my DNA . . . I never doubted it, and I didn’t believe anyone who told me otherwise. Even so, it was a long and tedious road to wellness. Probably the biggest barrier to getting the fresh foods I craved was that my family had moved to Juneau, Alaska, when I began Junior High. There was very little fresh, whole food available.

I did my best, however; and, as a teenager, I grew wheat grass for smoothies in an indoor window box. I experimented with many different diets, supplements and health programs. I also started a program of daily exercise, a practice that I am still committed to. Even when I was terribly fatigued and had a roaring headache, I went to the gym. It helped me psychologically as much as it helped my physically. At times, I improved somewhat, but I still reverted back to insomnia, headaches and fatigue.

When I was in my early 20s, I moved to Anchorage, a much larger city. There was better food available, and I continued to study whatever health-related information I could get my hands on. I also enjoyed my life, worked full-time and got married to a great fellow, Dave. He shared my views on health, which was a good thing for both of us. Although I often didn’t feel well, I never gave up. I knew there was an answer; and I knew that, eventually, I would find it.

In the early 80s, I decided to have my amalgam fillings removed. I had eight of them, and I’d become concerned about the mercury they contained. I was fortunate to find a good dentist who could perform their removal safely. The fillings were so toxic that they had to be disposed of as “hazardous waste.” I continued to experiment with green smoothies, fasting, cleanses, etc. Little by little, I started to feel better. Even so, I still had plenty of setbacks. It was pretty frustrating.

My dietary changes

Around the late 90s, I came to the conclusion that the only way I could be assured of feeling well was to eat a strictly organic diet. Just about any commercial product, from condiments to canned goods, produced debilitating migraines and insomnia. I didn’t know what was in the food, but I knew that whatever it was, it was not being labeled. And I knew another thing: It was toxic.

I started making all of our food from scratch and using only certified organic ingredients. In time, I became a pretty good cook. Since retiring in 2005, and moving to California, I’ve made a lot of new friends who share my views on health and wellness. Some don’t, however, and that’s okay. When I connect with these folks socially, I bring my own food. I explain to them that, due to health challenges, I simply cannot eat commercially made food. If they don’t understand it, they at least accept it, and that’s good enough for me.

Research confirms my suspicions about food

It’s only been in the last few years that I’ve found scientific evidence for what I’ve known for years: That the commercial food supply in the U.S. is poisoned. Dr. Russell Blaylock is probably the best source of information on MSG (monosodium glutamate), which causes many health problems. MSG is in many processed foods, and it is not labeled. It is known to cause ADD, migraines, insomnia, fatigue, and many other health problems. I could go on and on, but if you haven’t already seen it, I’d recommend you watch Dr. Blaylock’s video entitled, “Excitotoxins: The Taste that Kills.” He also has a book on Amazon by the same name.

I’m also a big fan of Dr. Joseph Mercola, who has a great website, Mercola.com, and provides a free weekly newsletter. Dr. Mercola is focused on disease prevention, and he has a lot of excellent information on his site. These men, along with countless other professionals and citizens are working hard to get the word out to the public. Oh yeah, I don’t want to forget Christy Pooschke, whose website you’re currently on. I love to see young people like Christy spreading the word!

Consumer power

As a Californian, I am watching the debate to label genetically engineered foods (Prop 37) with interest. I have been an advocate for labeling for years, and I belong to numerous consumer groups that support labeling, as well as organic and sustainable farming. I never miss the opportunity to email or phone my representatives to express my views. My fingers are crossed that if Prop 37 passes, it will raise public awareness. I am hoping it will also set a precedent, and we can push for labeling of MSG, as well.

Since the 1970s, I have seen a steady grass-roots movement towards greater awareness of our food and how it is impacting the health of our nation. One thing that has surprised me from the onset, though, is how hostile many folks are about the notion that their food is unsafe.  Because my health issues were so extreme, I was willing to try anything, and I do mean anything, to become well. I guess some people don’t like the idea of change, and that’s okay. Another big issue, I think, is our cultural conditioning to ignore our health, turn it over to a doctor, and take a pill. To my way of thinking, that is a prescription for disaster!

No MSG for me!

One thing people have asked me over the years is: “How can you be certain it is MSG that is the problem?” It is an excellent question, and one I will answer now. I became aware of my severe reaction to MSG during the 1970s, when it was in Chinese food and more frequently labeled. Many times, when I developed a particularly devastating migraine, I checked the labels and found MSG present. I became aware of a cascade of events that followed a large exposure. It started with a headache that rapidly worsened, and I frequently felt an uncomfortable itching just under my skin. As the day progressed, I braced for the night I knew was coming. Sleep would be out of the question, and I often had an odd urge to move my body. It wasn’t unusual for me to take off running at 1:00 or 2:00 in the morning when I had been exposed to MSG. It may have been dangerous to run at this hour, but it helped me recover faster.

As time went on, I became very familiar with the sensations that followed exposure to MSG. When I began to notice the tell-tale signs of MSG exposure, but I could no longer find MSG listed on food labels, I thought perhaps a similar product had been put on the market. I read labels religiously, and in fact, I recorded everything I ate for a number of years. I didn’t realize at that time that food companies could legally add unlabeled MSG to products by diluting it to 98%. When I learned that MSG had been added to baby foods for decades, an inner alarm started to sound. I felt pretty certain that MSG had been the primary culprit in much of my suffering.

I say MSG was the ‘primary’ culprit because I know that nitrates produce a similar reaction in my system. Most of the time, however, nitrates are labeled and easy to avoid. In my long journey from sickness to health, I did a lot of research on the food production in the U.S. My health challenges and my intuition told me it wasn’t ideal, but I found out that it was far worse than I could have imagined. The more I read about genetically modified organisms, nitrates in meats, not to mention the growth hormones, antibiotics and gmo foods that are fed to cows, I realized that I didn’t want any of it in my body!  As I mentioned earlier, I have only one guarantee for feeling well, and that is avoid all commercially made products. Because I know that there is no truth in food labeling in the U.S., 90% of what I eat has no label at all! Yes, I do eat organic chicken, cheese, and occasionally organic bread and pasta (imported from Italy); but for the most part, I make everything from scratch, and purchase only organic produce.

The good news

A word of encouragement here . . .  You can be well. Yes, it takes a lot of work and commitment, but the results are absolutely worth it. In my mid-fifties, I feel better than I’ve ever felt in my life. Yes, I’ve had a couple of ‘MSG smack-downs’ over the last few years when I’ve gone to restaurants. As a result, I no longer eat out. On the rare occasions when I am socially obligated to eat out, I bring my own food in a baggie and do the old ‘switch-er-roo.’ Yes, I actually swap my organic food for what is on the plate. Having suffered for so many years, I absolutely refuse to have one more minute of sickness! Now I enjoy sound sleep every night and don’t get migraines any more. I’ve got tons of energy, too. I honestly believe that our bodies want to be healthy! We have control over what we put into our bodies, and we can bring about change. Every time you purchase food, you vote with your dollar. In a capitalist, consumer-driven society, spenders are king. Spend wisely.

The effects of hidden food additives on Fibromyalgia symptoms

Fibromyalgia stole several years of my life. In 2002, I came down with what I thought was the flu – but it just wouldn’t go away, and doctors couldn’t figure out what was wrong with me. Nothing they did for me seemed to help. After more than 15 different prescription medications, countless appointments with various specialists and more than a handful of diagnostic procedures; I was eventually diagnosed with Fibromyalgia. For years, I lived in pure misery, suffering from a debilitating “invisible” illness for which doctors told me there was no treatment, no cure and no known cause.

Fortunately, in 2007, I stumbled upon some information that changed my life forever. I learned that there are ingredients in processed foods (e.g., high-fructose corn syrup, MSG, artificial colors/sweeteners) that are making people sick, tired and overweight. Immediately upon reading this information, my husband and I inspected the ingredients label on everything we were eating; and we came to the harsh realization that what we had been putting into our bodies wasn’t really even food. Every ingredient label in our kitchen was filled with mysterious words and chemical names!

Without hesitation, we completely purged our kitchen of processed foods and mysterious chemical ingredients – we threw food away, gave food away, and even sold some of it at our garage sale! We said good-bye forever to things like Lean Cuisine meals, Slim Fast bars, soda, chewing gum, ice cream and fast food. We began making all of our food at home…from scratch. We scrutinized the ingredients label on everything we purchased from that point on; and if it contained even one word that we didn’t fully recognize as having come from nature, we didn’t put it in our grocery cart. We also began to seek out local farmers and purchase as much food as we could directly from them – we wanted to fill our bodies with foods from the earth, not chemicals from a lab.

Within just a few months of these dietary changes, I realized that I was no longer in any pain and my fatigue and all of my other symptoms had completely dissipated, as well. No longer were my arms so weak that I could barely drive. No longer was I too fatigued to get out of bed. No longer was I in so much pain that I couldn’t bear to accept a hug from my loved ones. Actually, I couldn’t remember the last time I had suffered an episode of the abdominal cramping, insomnia, chest pains or racing heart beat that had plagued me for the last 5 years, either. In fact, it seemed that I felt better and had more energy than most people I knew (and 5 years later this is still the case for both of us – as long as we eat a completely additive-free diet)! So I kept reading every book I could get my hands on, and I still haven’t stopped educating myself about avoiding food additives and preparing natural, wholesome foods. The more I have learned about food additives, the more shocked and disgusted I’ve become. And when I read about the array of health problems (headaches/migraines, Fibromyalgia, digestive problems, cancer, chronic pain and fatigue, anxiety, depression, etc.) that are associated with these chemicals, it made me very angry!

One of the food additives that upset me the most is Monosodium Glutamate (“MSG”). Perhaps you are aware of the health effects associated with the MSG that is commonly used in Chinese food. However, many consumers are not aware that this very same MSG is added to all sorts of foods at restaurants and grocery stores, as well. Soups, potato chips, frozen dinners…and even foods that you would assume are just one ingredient (e.g., peanuts or sour cream) often contain MSG. MSG is a highly- processed food additive that is added to foods as a flavor enhancer. By over-stimulating our taste buds, MSG tricks our brains into thinking that a food item tastes good.

Unfortunately, according to experts like neurosurgeon Dr. Russell Blaylock, M.D., MSG also over-stimulates and disrupts our nervous systems which causes and exacerbates an array of health conditions (Fibromyalgia, headaches/migraines, vision problems, digestive distress, heart attacks, hyperactivity, obesity, infertility, etc.). For this reason, Dr. Blaylock refers to MSG (and artificial sweeteners, such as Aspartame) as an “excitotoxin.” Physiological responses to these excitotoxins are not allergic reactions – MSG and Aspartame are toxins, so everyone is sensitive to their effects to some degree.

Of course, it is best for all consumers to limit ingestion of MSG. Unfortunately, labeling laws have made this task difficult. By hiding MSG on ingredients labels under innocent-sounding names, such as “natural flavor” or “yeast extract,” food companies can legally add this toxin to food while preventing consumers from realizing it’s in there. With the many dozens of hidden names for MSG on food labels, avoiding this toxin can be challenging. One way to limit your exposure to MSG is to prepare all of your foods at home…from scratch. Even then, you must be certain to check the ingredients label of every item you use in your recipes because hidden MSG is often lurking in places you’d never suspect, such as some brands of canned tomato paste and canned tuna!

Of course, food additives are not the only factor to consider when treating Fibromyalgia. There are a variety of natural approaches that provide relief for those who are suffering. I am not a doctor, and I am certainly not advising anyone to abort their current treatment plan. However, “we are what we eat,” so I do encourage everyone to scrutinize their diets and to eat as many additive-free foods as possible. I am thankful everyday that I have found a solution that has worked for me and so many others.

Research about the effects of food additives on Fibromyalgia has been limited, but promising results were published many years ago in the Annals of Pharmacotherapy. I hope to see more studies conducted in the future. Until then, I will continue educating consumers about the health-depleting effects of food additives, sharing my personal return-to-health story, and teaching people how to shop for and prepare natural, additive-free foods.

I know that these changes seem overwhelming and there are a million “reasons” why you “can’t” make these changes. Believe me, I felt the same way! Just five years ago, I was eating fast food, candy, diet pop and frozen dinners. I had no idea how to cook, and I was also battling a chronic illness and suffering from extreme fatigue, weakness and pain. So, if I can make these changes, anyone can!! It’s just a decision that each of us must make to take an active role in maximizing our own health and wellness and to make conscious decisions about what we put into our bodies. I truly hope that you will consider the information that I have presented here and start doing your own research to begin making changes in your own life.

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